Regional Parent Carer Forum Update by Claire Powers

Last week I (virtually!) attended the Regional Parent Carer Forum meeting.  There was updates from Contact about Co-Production Week!-coproduction-in-a-changing-world/ and about their recent webinars for Parent/Carers interested in Forum activities (

Our West Midlands Regional representative Zara updated us on the work being done at national level.  Again I’d recommend regularly revisiting the NNPCF’s news page ( as things are moving on quickly at the moment and at the time of our meeting the educational guidelines for September had just been released.  One thing to be aware of it that anything to do with Special Educational Needs eg therapy services and the Designated Medical and Clinical officer roles are now ring fenced (protected) once more and services should be accessible and returning to normal or at least new normal!

The NNPCF is also the only parent representation on the National Schools Advisory Group so it is having input at the highest level and is well supported and championed by Vicky Ford (Parliamentary Under-Secretary for Education).

The NHS are implementing a Learning Disability/Autism Key Worker Pilot programme as part of their Long Term Plan and one area of the West Midlands will be part of the pilot to understand how these roles can work.  The focus of the pilots will be on the most complex cases at risk of needing inpatient admission and different areas may implement pilots differently as part of the objective will be to see what approach/model works best to inform any wider rollouts.